Medicinal cannabis: Mum says drugs help son’s severe epilepsy as de-registered doctor leads push to treat condition with hash oil
A mother whose 10-year-old son suffers from a rare form of epilepsy has backed a de-registered doctor’s drive to treat the condition with medical cannabis.
Lorraine Hunter’s son Hunter Elwell has dravet syndrome, a rare form of epilepsy that causes severe seizures and is resistant to most anti-seizure medications.
Hunter’s seizures were so dangerous he was regularly flown to hospital and given adult doses of painkillers like Fentanyl and morphine.
But now Ms Hunter says hash oil supplied by doctor Andrew Katelaris has transformed the boy’s life.
Dr Katelaris has a conviction for growing marijuana and has been spurned by the medical establishment since being deregistered for taking and supplying cannabis and other drugs in December 2005.
He is now running a trial supplying hash oil to 12 children with rare forms of epilepsy.
Ms Hunter gives the oil to her son by putting it in a syringe and feeding it into his stomach through a tube – the same way he gets all of his food.
“In the 18 months he’s been on it, he hasn’t had one paramedic call for seizures at all and he hasn’t had a stay for seizures in hospital,” Ms Hunter, from the New South Wales Central Coast, said.
“There were times he was in hospital for three months because he was having a seizure every 30 seconds.